The Illinois Governor recently signed SB 2886, which expands the scope of the state’s Genetic Information Privacy Act (“GIPA”) to include “biomarker testing” and “biomarker.” GIPA currently regulates the collection, use, and disclosure of genetic testing information.
The bill defines “biomarker” as “a characteristic that is objectively measured and
Continue Reading Illinois Expands Genetic Privacy Law to BiomarkersIn what continues to be a busy year for genetic privacy developments, Rhode Island has joined the growing number of states regulating direct-to-consumer (“DTC”) genetic testing with its recently enacted genetic privacy law, S 2203. With S 2203, Rhode Island is the fifth state to enact genetic privacy legislation this year, following Utah, South Dakota, Connecticut, and Vermont.
Continue Reading Rhode Island Enacts Genetic Privacy LawVermont recently enacted two privacy bills to regulate health-related information. These include H.639, a genetic privacy bill regulating direct-to-consumer genetic testing companies, and the Vermont Data Privacy and Online Surveillance Act (S.71), a comprehensive privacy law that extends heightened protections to “consumer health data.” You can read our full
Continue Reading Vermont Enacts Privacy Legislation to Regulate Health-Related InformationOn May 27, the Connecticut governor signed SB 4, an omnibus privacy law, followed a week later by two clean-up bills, HB 2222 and HB 5563 (collectively “SB 4”). SB 4, among other things, amends the Connecticut Data Privacy Act (“CTDPA”), establishes a data broker registry and accessible deletion mechanism, imposes restrictions on surveillance pricing, and creates requirements for direct-to-consumer genetic testing companies.
Continue Reading Connecticut Enacts Omnibus Privacy LawStates continue to enact laws regulating genetic data. Since our last update, the Connecticut governor has signed SB 4, an omnibus privacy law which contains provisions regulating direct-to-consumer (“DTC”) genetic testing companies. You can read our full analysis of SB 4 here.
Continue Reading Connecticut Enacts Genetic Privacy LawAt the state level, genetic privacy remains a fast-moving topic, and states continue to introduce and advance bills regulating genetic data.
Continue Reading Utah and South Dakota Enact Genetic Privacy Laws as Other States Advance BillsOn his last day in office, January 20, 2026, former New Jersey Governor Phil Murphy signed an amendment to the New Jersey Data Privacy Act, A5017. The bill amends the state’s comprehensive privacy law to add new data- and entity-level exemptions and to expand the definition of de-identified data. The amendment took effect immediately.
Continue Reading New Jersey Enacts Amendment to its Comprehensive Privacy LawFollowing a trend from the past few years, several states have introduced bills related to genetic privacy in recent months. These bills have focused on a range of issues, including the privacy practices of direct-to-consumer (“DTC”) genetic testing companies, the national security implications of “foreign adversaries” accessing genetic information, and other topics related to genetic privacy and testing. We summarize a subset of such recently introduced bills below.
Continue Reading Several States Introduce New Genetic Privacy Bills in Early 2026